Why Write a Blog?

Why am I writing a blog? I want to share a fairly unique situation and to hear from others who can relate and may have something to add.

My husband, Joe, and I continue to live with our middle-aged  daughter.  With her sweet and trusting personality Alexis has brought much that is positive into our lives and we have tried to do the same for her, even though she faces multiple challenges every day.

  Alexis has a severe form of epilepsy, as well as spastic quadriplegia and cortical blindness.  She has no formal communication system and very limited cognitive functioning, apparently - although sometimes she surprises us!  

 Alexis demonstrates a strong  interest in music and we have a lot of fun together exploring different musical genres and evaluating the work of various singers.  Alexis has definite dislikes and preferences in this area and it a great pleasure to observe her intense appreciation for some and disinterest or even distain for others!

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